A study to explore the professional conceptualization and challenges of self-management in children and adolescents with lymphedema

Moffatt, C. ORCID: 0000-0002-2436-0129, Aubeeluck, A., Stasi, E., Macsweeney, M., Mourgues, F., Pourquier, H., Lapointe, C., Mestre, S. and Quere, I., 2019. A study to explore the professional conceptualization and challenges of self-management in children and adolescents with lymphedema. Lymphatic Research and Biology, 17 (2), pp. 221-230. ISSN 1539-6851

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Abstract

Background: The aim of this study was to explore the professional experience of caring for children and adolescents with lymphedema and to explore the way in which they understand and implement self-management strategies and the influence of their own self-efficacy beliefs on this process.

Methods and Results: Participants were recruited during an educational camp for children with lymphedema. Three individual semistructured focus groups were undertaken in English, French, and Italian with simultaneous translation. Data were analyzed using interpretative phenomenological analysis (IPA). Analysis of the data produced three superordinate themes: professional concepts of self-management, professional practice, and redefining the cornerstone of lymphedema care. An additional seven subthemes were as follows: readiness to self-management, professional perspectives on self-management, defining success and treatment failure, emotional burden, traditional views on complex decongestive therapy, new ways to practice, and sole practitioner versus multidisciplinary teams.

Conclusions: The purpose of the study was to explore the challenges professionals face when introducing self-management to children and adolescents with lymphedema and their parents and to explore their own sense of self-efficacy in approaching this. The research allowed in-depth discussion about the ways they conceptualize self-management and faced professional challenges. The research highlighted the need to define what is considered an acceptable outcome within a complex and uncertain condition and the self-management strategies that are needed to support this.

Item Type: Journal article
Publication Title: Lymphatic Research and Biology
Creators: Moffatt, C., Aubeeluck, A., Stasi, E., Macsweeney, M., Mourgues, F., Pourquier, H., Lapointe, C., Mestre, S. and Quere, I.
Publisher: Mary Ann Liebert
Date: 22 April 2019
Volume: 17
Number: 2
ISSN: 1539-6851
Identifiers:
NumberType
10.1089/lrb.2018.0076DOI
Divisions: Schools > School of Social Sciences
Depositing User: Jonathan Gallacher
Date Added: 06 Mar 2019 10:16
Last Modified: 24 Sep 2019 14:05
URI: http://irep.ntu.ac.uk/id/eprint/35899

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