LIMPRINT study - the Turkish experience

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Borman, P., Moffatt, C. ORCID: 0000-0002-2436-0129, Murray, S., Yaman, A., Denizli, M., Dalyan, M., Unsal-Delialioğlu, S., Eyigör, S., Ayhan, F., Çakıt, B.D., Vural, S., Özdemir, O., Kurt, E., Çelik, E.C., Cerrahoğlu, L., Kepekçi, M., Terzioğlu, F. and Donmez, A.A., 2019. LIMPRINT study - the Turkish experience. Lymphatic Research and Biology, 17 (2), pp. 202-210. ISSN 1539-6851

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Official URL: http://doi.org/10.1089/lrb.2019.0015

Abstract

Background: Lymphedema and chronic oedema is a major healthcare problem in both developed and non-developed countries The LIMPRINT study is an international health service based study to determine the prevalence and functional impact in adult populations of member countries of the International Lymphoedema Framework (ILF).

Methods: 1051 patients from 8 centers in Turkey were recruited using the LIMPRINT study protocol. Data were collected using the core and module tools which assess the demographic and clinical properties as well as disability and QoL.

Results: Most of the Turkish patients were recruited from specialist lymphedema services and were found to be female, housewives and having secondary lymphedema due to cancer treatment. The duration of lymphedema was commonly less than 5 years and most of them had ISL Grade 2 lymphedema. Cellulitis, infection and wounds were uncommon. The majority of patients did not get any treatment or advice before. Most of the patients had impaired QoL and decreased functionality, but psychological support was neglected. Although most had social health security access to Lymphedema centres nevertheless access seemed difficult due to distance and cost.

Conclusion: The study has shown the current status and characteristics of lymphedema patients, treatment conditions, the unmet need for the diagnosis and treatment as well as burden of the disease in both patients and families in Turkey. National health policies are needed for the prevention, diagnosis and treatment in Turkey that utilise this informative data.

Item Type:

Journal article

Publication Title:

Lymphatic Research and Biology

Creators:

Borman, P., Moffatt, C., Murray, S., Yaman, A., Denizli, M., Dalyan, M., Unsal-Delialioğlu, S., Eyigör, S., Ayhan, F., Çakıt, B.D., Vural, S., Özdemir, O., Kurt, E., Çelik, E.C., Cerrahoğlu, L., Kepekçi, M., Terzioğlu, F. and Donmez, A.A.

Publisher:

Mary Ann Liebert

Date:

17 April 2019

Volume:

Number:

ISSN:

1539-6851

Identifiers: