Experiences of South Asian patients in early inflammatory arthritis clinic: a qualitative interview study

Kumar, K., Reehal, J., Stack, R.J. ORCID: 0000-0002-0516-0228, Adebajo, A. and Adams, J., 2019. Experiences of South Asian patients in early inflammatory arthritis clinic: a qualitative interview study. Rheumatology Advances in Practice, 3 (2), pp. 1-10. ISSN 2514-1775

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Abstract

Objective: The aim was to explore how UK South Asian patients living with RA interact with health care professionals and experience receiving health information in an early inflammatory arthritis clinic.

Methods: A semi-structured interview schedule, designed in conjunction with a patient partner, was used for face-to-face interviews. South Asian participants with RA were recruited from Central Manchester University Hospitals National Health Service Foundation Trust. Data were recorded and transcribed by an independent company. Data were analysed using inductive thematic analysis.

Results: Fifteen participants were interviewed. Three predominant themes emerged around participants’ experiences and interaction with health care professionals in early inflammatory arthritis clinic. First, ‘the personal experiences of RA and cultural link to early inflammatory arthritis clinic’, where participants described the impact of RA as individuals and their altered roles within their cultural setting. Second, ‘experiences of interacting and receiving information in the early inflammatory arthritis clinic’, where participants described their limited engagement with health care professionals and the quality of information discussed in the clinic. Third, ‘views on future content for early inflammatory arthritis clinics’, where participants highlighted new innovative ideas to build on current practice.

Conclusion: We believe this to be the first study to generate insight into the experiences of South Asian patients of interacting with health care professionals while attending an early inflammatory arthritis clinic. Policy directives aimed at improving access to services and delivery of information for ethnic minority groups in early inflammatory arthritis clinics should include consideration of the different roles of cultures. Professionals should be cognizant of the factors that drive health inequalities and focus on improving service delivery.

Item Type: Journal article
Publication Title: Rheumatology Advances in Practice
Creators: Kumar, K., Reehal, J., Stack, R.J., Adebajo, A. and Adams, J.
Publisher: Oxford University Press
Date: 4 July 2019
Volume: 3
Number: 2
ISSN: 2514-1775
Identifiers:
NumberType
10.1093/rap/rkz017DOI
1281837Other
Rights: C. The Author(s) 2019. Published by Oxford University Press on behalf of the British Society for Rheumatology. This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com.
Divisions: Schools > School of Social Sciences
Depositing User: Linda Sullivan
Date Added: 05 Feb 2020 14:52
Last Modified: 05 Feb 2020 14:58
URI: http://irep.ntu.ac.uk/id/eprint/39170

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