The development and validation of the LIMPRINT methodology

Moffatt, C. ORCID: 0000-0002-2436-0129, Franks, P., Keeley, V., Murray, S., Mercier, G. and Quere, I., 2019. The development and validation of the LIMPRINT methodology. Lymphatic Research and Biology, 17 (2), pp. 127-134. ISSN 1539-6851

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The acronym Limprint stands for Lymphoedema IMpact and Prevalence-INTernational and was run under the auspices of the International Lymphoedema Framework (ILF) a charity dedicated to improving provision of care globally. The primary aim was to identify the number of people with chronic oedema (chronic oedema present for > 3months and due to a range of underlying aetiologies and associated risk factors) within diverse health services in 9 participating countries and to determine its impact using validated methods. An international protocol and sampling framework, online data capture system and standard operating procedures were adopted. An international consensus was used to create a core data tool that covered 13 domains. Specialist data on demographics and disability, details of swelling, wounds, cancer and health related quality of life were also available for sites. The study protocol was designed to allow flexibility in the types of studies undertaken within complex health care systems. All cases were confirmed using the modified pitting test. Sensitivity and specificity for this method were determined in Japanese and European populations. Following confirmation of a chronic oedema case Lymphologists defined whether it was a primary of secondary form. The study was designed to provide robust evidence that chronic oedema is an important and unrecognised public health problem in health services with significant morbidity. Without evidence of the size and complexity it will remain considered a rare phenomenon and people affected will be denied access to appropriate treatment that would allow them to have fulfilled and productive lives.

Item Type: Journal article
Publication Title: Lymphatic Research and Biology
Creators: Moffatt, C., Franks, P., Keeley, V., Murray, S., Mercier, G. and Quere, I.
Publisher: Mary Ann Liebert
Date: 22 April 2019
Volume: 17
Number: 2
ISSN: 1539-6851
Rights: This is an open access article distributed under the terms of the Creative Commons CC BY license, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Divisions: Schools > School of Social Sciences
Record created by: Jonathan Gallacher
Date Added: 20 Mar 2019 15:50
Last Modified: 29 Apr 2019 12:21

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