Experiences of higher education for students with chronic illnesses

Hamilton, P.R., Hulme, J.A. ORCID: 0000-0001-6217-1815 and Harrison, E.D., 2023. Experiences of higher education for students with chronic illnesses. Disability & Society, 38 (1), pp. 21-46. ISSN 0968-7599

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Abstract

This paper explores the experiences of students with chronic illnesses in UK universities. Sixty-seven students with chronic illnesses completed an online survey with open-ended questions about their experiences in higher education. Questions covered four main topics: academic work; university staff; social and extracurricular activities; and participants' miscellaneous opinions. Using thematic analysis, the data were analysed with references to the social model of disability and social representations of chronic illness. Participants wrote of misconceptions surrounding chronic illnesses, a sense of inequality, and feeling undervalued. Many staff members seemed to lack understanding and so 'policed' academic regulations rather than accommodating for their chronic illnesses. However, some participants wrote of social and academic 'allies' who offered understanding and proactive support. The findings add substance to the chronic illness literature with the focus on students at university, and we offer recommendations to universities for improving inclusivity for students with chronic illnesses.

Item Type: Journal article
Publication Title: Disability & Society
Creators: Hamilton, P.R., Hulme, J.A. and Harrison, E.D.
Publisher: Taylor & Francis
Date: 2023
Volume: 38
Number: 1
ISSN: 0968-7599
Identifiers:
NumberType
10.1080/09687599.2021.1907549DOI
1743463Other
Rights: © 2021 the author(s). Published by Informa UK limited, trading as Taylor & Francis Group. This is an open access article distributed under the terms of the creative commons attribution-Noncommercial-NoDerivatives license (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way.
Divisions: Schools > School of Social Sciences
Record created by: Linda Sullivan
Date Added: 23 Mar 2023 13:35
Last Modified: 23 Mar 2023 13:35
URI: https://irep.ntu.ac.uk/id/eprint/48596

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