Rumbold, J ORCID: https://orcid.org/0000-0002-3308-711X and Pierscionek, B ORCID: https://orcid.org/0000-0002-8661-6353, 2018. Contextual anonymization for secondary use of big data in biomedical research: proposal for an anonymization matrix. JMIR Medical Informatics, 6 (4): e47. ISSN 2291-9694
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Abstract
Background: The current law on anonymization sets the same standard across all situations, which poses a problem for biomedical research.
Objective: We propose a matrix for setting different standards, which is responsive to context and public expectations.
Methods: The law and ethics applicable to anonymization were reviewed in a scoping study. Social science on public attitudes and research on technical methods of anonymization were applied to formulate a matrix.
Results: The matrix adjusts anonymization standards according to the sensitivity of the data and the safety of the place, people, and projects involved.
Conclusions: The matrix offers a tool with context-specific standards for anonymization in data research.
Item Type: | Journal article |
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Publication Title: | JMIR Medical Informatics |
Creators: | Rumbold, J. and Pierscionek, B. |
Publisher: | JMIR Publications |
Date: | 22 November 2018 |
Volume: | 6 |
Number: | 4 |
ISSN: | 2291-9694 |
Identifiers: | Number Type 10.2196/medinform.7096 DOI |
Divisions: | Schools > School of Science and Technology |
Record created by: | Linda Sullivan |
Date Added: | 29 Oct 2018 13:49 |
Last Modified: | 04 Dec 2018 11:06 |
URI: | https://irep.ntu.ac.uk/id/eprint/34782 |
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