Involvement and burden of informal caregivers of patients with mental illness: the mediating role of affiliated stigma

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Kaggwa, MM, Najjuka, SM, Mamun, MA, Griffiths, MD ORCID: https://orcid.org/0000-0001-8880-6524, Nyemara, N and Ashaba, S, 2023. Involvement and burden of informal caregivers of patients with mental illness: the mediating role of affiliated stigma. BMC Psychiatry, 23 (1): 72. ISSN 1471-244X

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Official URL: https://doi.org/10.1186/s12888-023-04553-x

Abstract

Background: The fear and lack of understanding of mental illness can lead to stigma. The stigma of mental illness affects not only individuals who suffer from it, but also the caregivers. Stigma among caregivers can lead to delay in seeking care, poor adherence to treatment and a high risk of relapse. Caregivers of patients with mental illness are at an increased risk of distress due to the burden to stigma and caregiving burden. An increase in caregivers’ burden can lead to a reduction in caregivers’ involvement. There is a relationship between caregivers’ involvement, burden, and affiliated stigma. The present study examined the mediating role of affiliated stigma in the relationship between caregivers’ burden and involvement among informal caregivers of hospital-admitted patients with mental illness in Uganda.

Methods: A cross-sectional study was conducted among 428 informal caregivers (mean age: 39.6 years [SD±14.6]; females = 62.1%). Information was collected regarding sociodemographic characteristics, affiliated stigma, and the involvement and burden of informal caregivers.

Results: The findings indicate that affiliated stigma serves as a full mediator between the caregiver’s roles and involvement (β=15.97, p<0.001). Being female increased the caregivers’ burden of caregiving (β= -0.23, p<0.001).

Conclusion: The findings in the present study suggest that intervention to address affiliated stigma among caregivers of patients with mental illness should be incorporated into mainstream mental health care to reduce the caregiving burden.

Item Type:	Journal article
Publication Title:	BMC Psychiatry
Creators:	Kaggwa, M.M., Najjuka, S.M., Mamun, M.A., Griffiths, M.D., Nyemara, N. and Ashaba, S.
Publisher:	Springer Science and Business Media LLC
Date:	26 January 2023
Volume:	23
Number:	1
ISSN:	1471-244X
Identifiers:	Number Type 10.1186/s12888-023-04553-x DOI 1641157 Other
Rights:	© The Author(s) 2023. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
Divisions:	Schools > School of Social Sciences
Record created by:	Laura Ward
Date Added:	01 Feb 2023 09:27
Last Modified:	01 Feb 2023 09:27
URI:	https://irep.ntu.ac.uk/id/eprint/48141