“I am more than just my label”: rights, fights, validation and negotiation. Exploring theoretical debates on childhood disability with disabled young people.

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Brady, G ORCID: https://orcid.org/0000-0002-3431-6543, Franklin, A and RIP:STARS Collective, 2023. “I am more than just my label”: rights, fights, validation and negotiation. Exploring theoretical debates on childhood disability with disabled young people. Sociology of Health and Illness, 45 (6), pp. 1376-1392. ISSN 0141-9889

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Official URL: https://doi.org/10.1111/1467-9566.13678

Abstract

Through the creation of safe spaces in which to explore and challenge dominant negative views of disabled children and young people, this co-written paper presents unique insight into the meaning and impact upon disabled young people’s lives of medical lenses and deficit models of disability. Bodies of work and dominant debates in medical sociology, disability studies and childhood studies have so far largely overlooked the experiences and positioning of disabled children and young people and have rarely involved them in the development or discussion of theory. Drawing on empirical data, and through a series of creative, reflective workshops with a UK-based disabled young researchers’ collective (RIP:STARS), this paper discusses areas of theoretical importance identified by the disabled young researcher collective - the validation of their lives, negotiation of their identity and acceptance in society. The implications, and possibilities, of platforming disabled children and young people’s voices in theoretical debates are deliberated and are achieved through the yielding of privileged academic voice and the development of a symbiotic, genuine partnership which resonates with disabled young people and recognises them as experts in their own lives.

Item Type:	Journal article
Publication Title:	Sociology of Health and Illness
Creators:	Brady, G., Franklin, A. and RIP:STARS Collective
Publisher:	Wiley
Date:	20 July 2023
Volume:	45
Number:	6
ISSN:	0141-9889
Identifiers:	Number Type 1755482 Other 10.1111/1467-9566.13678 DOI
Rights:	This is the peer reviewed version of the following article: BRADY, G., FRANKLIN, A. and RIP:STARS COLLECTIVE, 2023. “I am more than just my label”: rights, fights, validation and negotiation. Exploring theoretical debates on childhood disability with disabled young people. Sociology of Health and Illness, 45 (6), pp. 1376-1392, which has been published in final form at https://doi.org/10.1111/1467-9566.13678. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
Divisions:	Schools > School of Social Sciences
Record created by:	Jonathan Gallacher
Date Added:	02 May 2023 10:02
Last Modified:	21 Jun 2024 03:00
URI:	https://irep.ntu.ac.uk/id/eprint/48856