Associations between affiliate stigma and quality of life among caregivers of individuals with dementia: mediated roles of caregiving burden and psychological distress

Hu, Y, Chang, C, Lee, C, Liu, C-H, Chen, Y, Su, J-A, Lin, C-Y and Griffiths, MD ORCID logoORCID: https://orcid.org/0000-0001-8880-6524, 2023. Associations between affiliate stigma and quality of life among caregivers of individuals with dementia: mediated roles of caregiving burden and psychological distress. Asian Journal of Social Health and Behavior, 6 (2), pp. 64-71. ISSN 2772-4204

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Abstract

Introduction: The associations between affiliate stigma, caregiving burden, psychological distress, and quality of life (QoL) among family caregivers of people living with dementia (PwD) have been demonstrated in the literature. However, there is a dearth of literature regarding how these factors could form a psychological mechanism. The present study proposed a theoretical model to portray the relationships between these factors.

Methods: Utilizing convenience sampling and cross-sectional study design, 275 family caregivers (145 females [52.7%]; mean age = 52.71 years) were recruited from a general hospital from October 2013 to September 2014. Each participant completed the following instruments in a quiet room in the general hospital without disturbance: Caregiver Burden Inventory, World Health Organization QoL Questionnaire-Brief, Affiliate Stigma Scale, and Beck Anxiety Inventory alongside the Taiwan Depression Questionnaire (assessing psychological distress). Structural equation modeling was used to examine the proposed theoretical model.

Results: Affiliate stigma (standardized coefficient [β] = −0.338; P = 0.011) and psychological distress (β = −0.538; P < 0.001) were negatively associated with QoL, caregiving burden was positively associated with psychological distress (β = 0.818; P < 0.001), and affiliate stigma was positively associated with caregiving burden (β = 0.793; P < 0.001). Moreover, a significant mediated effect was observed between affiliate stigma and QoL via sequential mediators of caregiving burden and psychological distress (unstandardized coefficient = −1.17 and 95% confidence interval = −1.88, −0.46).

Conclusion: Affiliate stigma, caregiving burden, and psychological distress are key factors contributing to low QoL among family caregivers of PwD. Health-care providers should design programs to help reduce affiliate stigma, caregiving burden, and psychological distress for family caregivers of PwD to facilitate their QoL.

Item Type: Journal article
Publication Title: Asian Journal of Social Health and Behavior
Creators: Hu, Y., Chang, C., Lee, C., Liu, C.-H., Chen, Y., Su, J.-A., Lin, C.-Y. and Griffiths, M.D.
Publisher: Medknow Publications
Date: 30 May 2023
Volume: 6
Number: 2
ISSN: 2772-4204
Identifiers:
Number
Type
10.4103/shb.shb_67_23
DOI
1789580
Other
Rights: © 2023 Asian Journal of Social Health and Behavior. Published by Wolters Kluwer – Medknow. This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution‑NonCommercial‑ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non‑commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
Divisions: Schools > School of Social Sciences
Record created by: Jonathan Gallacher
Date Added: 08 Aug 2023 07:49
Last Modified: 08 Aug 2023 07:49
URI: https://irep.ntu.ac.uk/id/eprint/49516

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