Involving young people with life-limiting conditions in research on sex: the intersections of taboo and vulnerability

Earle, S ORCID: https://orcid.org/0000-0003-2810-5659 and Blackburn, M, 2021. Involving young people with life-limiting conditions in research on sex: the intersections of taboo and vulnerability. International Journal of Social Research Methodology, 24 (5), pp. 545-551. ISSN 1364-5579

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Abstract

There is a growing literature that seeks to explore what is ‘sensitive’ about ‘sensitive’ research. In order to problematise and interrogate the concept of what may or may not be considered ‘sensitive’ research, this paper draws on four related projects exploring sex, intimacy and relationships for young people, over 16 years, who have life-limiting or life-threatening conditions (LLTCs). The authors focus on how, when and why these projects are regarded as ‘sensitive’ and consider who defines them as such. Drawing on the notion of methodological performativity, a mixture of complex phenomena that explores the relational aspects in interprofessional team practices, the authors examine aspects of the process of doing ‘sensitive’ research, exploring how research methods and techniques are employed because the research has already been defined (by others and the authors) as ‘sensitive,’ while simultaneously serving to (re)construct and (re)enforce the ‘sensitive’ nature of it.

Item Type:	Journal article
Publication Title:	International Journal of Social Research Methodology
Creators:	Earle, S. and Blackburn, M.
Publisher:	Informa UK Limited
Date:	3 September 2021
Volume:	24
Number:	5
ISSN:	1364-5579
Identifiers:	Number Type 10.1080/13645579.2020.1857968 DOI 2498283 Other
Rights:	This is an Accepted Manuscript of an article published by Taylor & Francis in International Journal of Social Research Methodology on 4 December 2020, available at: https://doi.org/10.1080/13645579.2020.1857968
Divisions:	Schools > School of Social Sciences
Record created by:	Laura Borcherds
Date Added:	17 Sep 2025 08:36
Last Modified:	17 Sep 2025 08:36
URI:	https://irep.ntu.ac.uk/id/eprint/54344

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